 |
Marfan Support and Information in NSW |
|
About MarfanS Health Issues Personal Resources & News Marfan Queensland
online enquirydiscussion forum
community
photo gallery
resources
marfan support
- Google Translate might come in handy one time
- NMF Connect
- NMF on Twitter
- Marfan Friends World Forum
- Marfan Syndrome Support Group UK, previously Darren's UK forum.
- live journal Marfan group
- HeartNet - Western Australian
- Belgian Forum in French
- SIMA Spanish Marfan Assoc. & Forum
Marfan Support in Australia
Marfan in NSW
See Online Enquiry.
There is a Marfan contact phone number on message bank - not connected with the website.
- Marfan Victoria
- Marfan Queensland - see section Marfan Queensland on home page of this website.
Northern Territory
Contact Tanya in Alice Springs, on:
- phone no.(08) 8955 0111
or e-mail
South Australian, Adelaide
- Women and Children Hospital. Head Clinical Genetics: Prof.Eric Haan.
WA
See the page Genetic Services for :
- Genetic Council WA
Other
- ConnecTeD or Connected Tissue Dysplasias Inc.
International Marfan Support
Associations/Organisations/Support groups
- National Marfan Foundation, USA (also check page Living with Marfan syndrome). Lots of information on line.
- International Federation of Marfan Syndrome Organisations, or IFMSO
- Argentina in Spanish
- Belgium in French
- Vlaamse Vereniging voor Erfelijke Bindweefselaandoeningen re.MarfdanS and EDS
- Brasil in Portuguese and English
- Canada
- Danmark
- France
- Marfan diagnosis in French.
- Germany
- Gt.Britain
- Marfan Trust UK Research
- Ireland
- Italy
- Japan
- Mexico
- Netherlands or Holland
- Norway
- Peru
- Poland
- South Africa or SAMSO
- Singapore
- Spain
- Sweden
- Switserland in German, French and Italian
- Marfan Syndome on NIAMS- see right Index for Spanish version
- Marfan Related Disorders
Names and words in green are links to other websites or pages.
Marfan Forums -