Welcome to Marfan support and information in NSW






* This website is a personal website



• Links in light and dark green will take you to the particular locations.
  
  
• pdf.files require Adobe Reader to be read.
  
  
• Info - go straight to about Marfan syndrome
  
  
• Marfan Overview on Power Point file - a good and clear overview with graphics for kids in High School - but a bit slow to download (set up by the mother of the young man in picture on the right).
  
  

  
  

• Discussion Forum has been closed
  For Marfan support on forums look here
  But you can still find somebody to write with in Community
  
  
• Losartan - Q.and A. Also see - Pediatric Heart Network
  
• Enrollment for losartan trials
  
  

  
  
  
  
  

• Computer disposal - the wrong way & the right way
  
  

5feb10
clip of In My Hands looks like a good documentary on MarfanS. An interview Rosie from Siriusxmstars has with the producer of the Documentary.