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Marfan Support and Information in NSW |
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About MarfanS Health Issues Personal Resources & News Marfan Queensland
online enquirydiscussion forum
community
photo gallery
resources
- This website is a personal website
- Links in light and dark green will take you to the particular locations.
- pdf.files require Adobe Reader to be read.
- Marfan Overview on a Power Point file - good for High School kids.
- Trailer Leef Je Droom or, Sailing with the Disability of MarfanS.
And another link on sailing and that is - Sail 2010
and YouTube
- NMF Conference Houston Texas 2010
- 22july10 - warning message from NMF re.coumadin 1 mg blister packs. See -
Bristol-Myers Squibb and recall
- The University of Sydney
From NMF -
- TAD (Thoracic Aortic Disease).
- International Marfan Symposium September 2010 for scientists and clinicians/medical professionals - you can download the brochure about symposium there.
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8th International Research Symposium on Marfan Syndrome
“Advances in Pathogenesis and Treatment of Marfan Syndrome and Related Disorders”
September 11-14, 2010
Airlie Center, Warrenton, VA, USA
Welcome to Marfan support and information in NSW
- The Sun : The Facebook photo that saved my life.
- PGD
- the Melbourne Shuffle
&
Personal / Tuttifrutti
The Doctor is in !
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September 2010